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Hudson child ambassador for Nick Jonas' diabetes organization

Evamere student Isabella Dooley, 5, working with Beyond Type 1

by Laura Freeman | Reporter Published: September 14, 2016 12:20 AM
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Hudson -- What does singer and actor Nick Jonas have in common with an Evamere kindergartener?

They both have type 1 diabetes.

Jonas, now 23, was diagnosed with type 1 diabetes at age 10.

Isabella Dooley, soon to be 6, was diagnosed when she was 2 and is an ambassador for the new non-profit organization, Beyond Type 1, based in Menlo Park, California, and created by Jonas, Juliet de Baubigny, Sarah Lucas and Sam Talbot. Beyond Type 1 increases awareness, provides support and raises funds for type 1 diabetes.

When Jonas was in town Sept. 2 for his Future Now Tour with Demi Lovato at the Quicken Loans Arena in Cleveland, the Dooley family of Hudson residents Greg and Kristina with triplets, Isabella, Max and Mia, met Jonas before the concert.

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"My kids know him from the Disney movie 'Camp Rock,' and Isabella knows him because of the type 1 diabetes connection," said Isabella's mother, Kristina. "She wears the same constant glucose monitor as he does. She has seen him wearing the same device."

Type 1 diabetes has no known cause or cure, but strides are being made in diagnosing and managing the disease, Kristina said. Most people are diagnosed as young children, and it was called juvenile diabetes but more adults are being diagnosed.

Isabella is the only child at Evamere with type 1 diabetes, Kristina said. Even before she became an ambassador, she has been educating others about the disease.

"She was probably youngest kid who could spell carbohydrates because she would find it on the package of her food," Kristina said.

The Dooleys were living in Mexico City at the time of Isabella's diagnosis, Kristina said. She was in preschool, and the teacher sent a note home to send a water bottle because Isabella had been asking for something to drink all day.

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"It triggered something in me," Kristina said. "Why did she need water and the other two [siblings] didn't?"

She searched on the internet and called her pediatrician who ran tests.

"When she was diagnosed, we knew nothing about this disease," Kristina said.

When the diagnosis came back for type 1 diabetes, Greg and Kristina learned how to give injections, count carbs and manage the disease for a 2-year-old.

"We were lucky it was caught when it was and got it under control before it was fatal," Kristina said. "We want to raise awareness."

Greg recently joined the Leadership Council of Beyond Type 1 which includes others such as actor Victor Garber and winner of the Amazing Race, Dr. Nat Strand.

The Dooley family, along with the Facebook "Inspired by Isabella" team of 130 people, will walk Sept. 18 at the Cleveland Metroparks Zoo in the JDRF One Walk to raise $6,000. In the past four years, they have raised more than $50,000.

Also, November is diabetes awareness month and Nov. 14 is World Diabetes Day.

Email: lfreeman@recordpub.com

Phone: 330-541-9434

Twitter: @LauraFreeman_RP

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